American RSDHope includes links here to websites that can provide support to not only the patient but also their families.; on Medication Assistance, Suicide Prevention, CRPS Videos, and more. Be sure to check out our other Link Sections.
CRPS Videos on YouTube
Here is a link to some of the videos people have posted on YouTube. It is just a sampling of some of them. I just did a simple search so I don’t vouch for any of them but it gives you an idea of the variety that is out there!
We have quite a few CRPS videos on our website now in the CRPS Media Audio/Video section of the website.
Advocacy For Patients with Chronic Illness
Where patients can get free information, advice and advocacy services.
Goodsearch
Raise Money for American RSDHope through Shopping! Searching! Dining! and more! Just what you would normally do anyway! Check it out!
HEALING HEROES NETWORK – Read about about this wonderful non-profit organization that treats wounded veterans. CRPS/RSD is just one of the many diseases treated by Healing Heroes Network!
Partnership for Prescription Assistance
The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free.
State Pain Policy Advocacy Network SPPAN – Run By the American Academy of Pain Management – SPPAN is an association of leaders, representing a variety of health care and consumer organizations, and individuals, who work together in a cooperative and coordinated fashion to effect positive pain policy on the state level—policy that guarantees access to comprehensive and effective pain care for all people living with pain.
SPPAN is creating a comprehensive and coordinated approach to improve pain policy. Its intent is to provide advocacy leaders with up-to-date information about pain management-related policies, and to give them the tools and resources they need to engage and mobilize other advocates in their state-based networks. SPPAN communicates with its members through bi-monthly meetings, policy updates, and action alerts. SPPAN’s resources include: bi-monthly teleconferences, electronic newsletters, a comprehensive website with resource links, policy statements, a state policy analysis grid, draft legislative and regulatory language, and training and networking opportunities.
With all the changes that are being attempted by State Medical Boards regarding Pain Medicine and practices a coordinated effort was needed regarding Pain Legislation. This is a wonderful website where you can go for help and information if you want to help in your state and local community!